Amicus Therapeutics, research leader in rare and orphan diseases.

Amicus Therapeutics, research leader in rare and orphan diseases.
Amicus Therapeutics is new Jersey-based biopharmaceutical company whose main focus is the development of technologies used in therapy for treatment of a wide range of diseases focusing more on rare and orphan diseases. In fact, the emphasis has been given to three key elements as the basis for the development of therapeutic remedies. The disease has to be rare, the technology must have potential to be top-notch quality and data available or collected must translate to significant benefits for patients.
The company has also taken upon itself to cultivate personal and compassionate approaches to patients as well as their caregivers and the entire family at large. This culture has been heavily underlined in the company’s focus especially in the advancement of treatments for CDKL5 deficiency Lysosomal Storage Disorders as well as Epidermolysis Bullosa.
Amicus has set a patient advocacy forum to know as Amicus Patient & Professional Advocacy which partners with various stakeholders such as healthcare practitioners, patients, caregivers and families and other concerned parties to deliver the highest quality support system for persons living with various rare conditions.
The company has its international headquarters in Buckinghamshire, United Kingdom while operating from other countries including Italy, France, Spain, Germany and the Netherlands. Its corporate headquarters is in Cranbury, New Jersey, USA.
The team of dedicated professionals at Amicus Therapeutics, is led by Chairman John F. Crowley. His background and relationship with therapeutic cure go back to whose background goes way back to1998 when two of his children were diagnosed with a rare and severe neuromuscular disorder known as Pompe Disease. He co-founded Novazyme Pharmaceuticals which immersed itself in research on the Pompe Disease and was of significant contribution to saving the children’s lives. The company was later sold out but Crowley remained Senior Vice President. Amicus is thus in the hands of a man who understands the effects of rare diseases.
Amicus Therapeutics has partnered with several organizations over time and recently applied a request for authorization to market migalastat a drug meant to cure Fabry disease.


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Lovaganza 2020: Celebrating Culture, Promoting Unity

Lovaganza from J-Scott on Vimeo.

In an effort to join together as one nation, Lovaganza 2020 will take place from May to September in the year 2020. However, plans are already in the works for this bohemian adventure celebration. It will concurrently showcase all cultures from the world to pay respect to each heritage. This production will be groundbreaking, and many are anxiously awaiting this extravaganza. There will be attractions, demonstrations, and tons of other bedazzling entertainment. It will have a “Cinerama feel with the wistfulness of the World’s Fairs of a former era.”

The event will occur in eight different “flagship” locations. Some of the locations where these celebrations will take place are in North America, Africa, Europe, Asia, Oceania and the Middle East. The theme for the celebrations is “embarking on a Bohemian adventure around the world.” The celebration was originally supposed to be in 2015, but it has been pushed back to 2020. The production company wanted to use the emerging technologies to push the entertainment factor to a whole new level. Unfortunately, to set a precedence for the technological advances they intend to use, it required more time. For four months there will be celebrations from one end of the globe to another. At the end, there will be a ceremony of Hands Across the World. It will be an unprecedented event that will link the cultures with unity.

In 2017, a preceding traveling show will hit the roadways to promote the 2020 event. The powers that be will pass out cinematic glasses that are 3D. There will be no charge for these glasses or any information packages handed out. They will help to explain their missions and goals for this project. After the distribution of promotion materials, three major motion pictures will be released that will ramp up the crowds for 2020. These movies will be shown in the Lovaganza traveling pavilions with 3D technology, but will also be available in other theaters too. The footage for these movies has already begun shooting in the US, Spain, and also France. As far as Africa, India, and the rest of the world, they will begin shooting at a later date. These productions will use the groundbreaking Immerscope screens. This will allow viewers to have a cinematic experience that is both nostalgic and futuristic at the same time.

Some see this as a similar feat to the “We Are the World” celebration that was done in 1980. In a time when the world needs unity and peace, Lovaganza steps up and attempts to take on this momentous task.


UPDATE 8/25/26: Check out these illustrations of the Lovaganza 2020 Park as it will look when it is built in Santa Clarita, California. Courtesy of Javier Martinez, | Follow on Twitter @Lovaganza_ | Like on Facebook